Does anyone have Treacher Collins Syndrome?
Does anyone have TCS with the BAHA cochlear implant?
I had this procedure in August of 2008 and have worn the aid since January 2009. It kind of got like a blister bubble around the inside of the rim of the bolt and my husband popped it and I have been trying to keep it clean.. I use bactein and sometimes Neosporin. I am just wondering if anyone who has had it awhile has balding completely where the cut the skin and if it is sensitive? I thought I had hair growing after the surgery, I just don’t know why it is bald now. It’s not because of the bactein is it, or could it be infected? It doesn’t feel or look infected…
Also, I can’t stand it when people always accidentally knock my hearing aid off, does anyone one experience this too?
If you or a loved one has Treacher collins Syndrome please join my myspace group http://groups.myspace.com/TreacherCollinsSyndrome
Susie – are you the same Susie on the TCS group online? Regarding the Baha, you can also join the Baha group on Yahoo groups; I don’t have the URL handy but the email address might bring it up for you:
BAHA_PPL@yahoogroups.com
Judy